“My husband and I have only been married 5 years, I need more time to show him how much I truly
love him. I want my lifetime with him. I want the fighting, and loving. He has stayed by me though
everything, even when it gets so frustrating I could give up. Though we both are frustrated by my
disease, he has never let that break us. He won't give up on me. He has given up so much to make me
happy and to do what is right for me, never thinking how it's going to affect him first. He would do
anything for me, and this I know because he has done everything for me. I have never been so in love
with anyone else in my life. He is the only one that makes me whole. He is always loving me, and for that
I love him.”
Those words were written by Megan, in October of 2010. At the time, she was incredibly sick. An oxygen machine had sat in our living room, loudly buzzing away 24/7 for about a year so far. More often than not, she wasn’t home, she was in the hospital. I would mix and prepare her aerosol treatments for her, bring her her pills, wash her clothes, cook dinner, and go to work. I’d lift her into and out of the tub, and wash her hair for her. If we did leave the house, I would ensure she had everything she needed, including a wheelchair.
It took a village, make no mistake. Her parents were there for her, for us, whenever she needed. I couldn’t be there at all hours. I had to stay in a dead-end job, with a 2 hour commute each way, just so we could keep our insurance. Even when I would receive offers from nearby and more desirable employers, I couldn’t entertain them, because the 90 day wait for healthcare would have bankrupted us in medical bills. Her parents certainly were focused on her well-being, and Shelby’s, and more than made up for the times that I couldn’t be there.
It was a thankless job...or so I thought.
I sat down this chilly morning in Virginia to write this update. I'm working from my iPad here, and midway through I got up to take a shower. I closed my iPad. When I got back downstairs and opened it to continue writing there was, strangely, a song playing. I hadn't opened the music app on this thing - ever. I don't even know what music is on here and never use it for that. The song playing, much to my shock, of all things, was Peter Pan's You Can Fly. I have no idea how it even got on there.Read more