20 years ago, I woke up to a screaming drill instructor, chaos, mind games, and effectively running everywhere I went. I lived in a green uniform, seeing no other colors but black, green, and brown for months. I swam in 10 foot deep water with 120 pounds of gear, went 3 days and 48 miles of marching on 4 hours of total sleep (and one meal). I didn’t speak with my family for 13 weeks, other than the occasional letter. I ran until I died, and then ran some more. Rifle marksmanship, hand-to-hand combat, history, military legal codes, uniform standard, rappelling, gas chambers, and a multitude of other subjects were drilled into my head, non-stop, and if I should not be sufficient in any given one, I would be held back and given another week on that godforsaken island in South Carolina.
Marine Corps recruit training (boot camp) was the hardest thing I had ever done, and for a long time, I thought it would be the hardest thing I would ever do.
If it was, I wouldn’t be writing to you today.Read more
The fact of the matter is, I’m a 37 year old widower. By most standards, it’s quite unique. I wasn’t married to someone in a high-risk career. Megan wasn’t in her seventies, hell, she barely made it into her thirties. Statistically, I’m much more likely to be divorced than widowed at my age.
The fact of the matter is, Cystic Fibrosis is a brutal disease. It’s filled with ups and downs that last a lifetime. Emergency room trips and months-long inpatient stays, immediately followed by “feeling good” and leading a normal life for awhile. One can never plan their lives out more than a few months in advance. You just don’t know what’s around the corner.
The fact of the matter is, I understood all of this very early on in Megan and I’s relationship. I knew she would have to be admitted to the hospital for, at a minimum, two weeks at a time, multiple times per year. I was completely aware that birthdays, holidays, vacations and other events would be a crap shoot from time to time, not knowing if she would be blowing out candles or coughing up blood.
The other day I received a text message from a friend of mine, who happens to have Cystic Fibrosis herself. This friend was there for Megan and I when Megan was going through her 6 month decline, and I can’t describe enough how she (and her husband) went above and beyond for us.
They would visit at the drop of a hat, when I just needed an hour away from the ICU, and Megan needed an hour away from my ugly mug. They would bring clandestine snacks for Megan when she had cravings, as she almost never had an appetite, but when she did, she needed broccoli and cheese soup (I can no longer stand the smell) or M&Ms RIGHT NOW.
I spoke with her every day during Megan’s hospitalization, giving her status updates, vital statistics, and news. She would get all the gory details, and, if I happened to be running late with the call, I would get a text not long after, asking how Megan was doing. She really did care whole-heartedly.Read more