Three months after my discharge from the Marine Corps, at 22 years old, I met my wife Megan, on December 10th, 2002. The very next day, I was drawn like a moth to a flame into dealing with a long term, terminal illness. Megan had Cystic Fibrosis, and after 8 years or declining health, she received a double lung transplant, and a new lease o life. Our daughter Shelby was born in 2007. In early 2014, those recycled lungs, which had brought our little family three years of uncomplicated health and happiness, finally began to give out. She died from chronic organ transplant rejection on November 19th, 2014 while I held her hand and let her go. I'm a single father and widower at 34 years old, and no one has published a manual for it. I don't fit the mold, because there is no mold. I "deal with it" through morbid humor, inappropriateness, anger, and the general vulgarity of the 22 year old me, as if I never grew up, but temper it with focus on raising a tenacious, smart, and strong woman in Shelby. I try to live as if Megan is still here with us, giving me that sarcastic stare because yet again, I don't know what the hell I'm doing.
The fact of the matter is, I’m a 37 year old widower. By most standards, it’s quite unique. I wasn’t married to someone in a high-risk career. Megan wasn’t in her seventies, hell, she barely made it into her thirties. Statistically, I’m much more likely to be divorced than widowed at my age.
The fact of the matter is, Cystic Fibrosis is a brutal disease. It’s filled with ups and downs that last a lifetime. Emergency room trips and months-long inpatient stays, immediately followed by “feeling good” and leading a normal life for awhile. One can never plan their lives out more than a few months in advance. You just don’t know what’s around the corner.
The fact of the matter is, I understood all of this very early on in Megan and I’s relationship. I knew she would have to be admitted to the hospital for, at a minimum, two weeks at a time, multiple times per year. I was completely aware that birthdays, holidays, vacations and other events would be a crap shoot from time to time, not knowing if she would be blowing out candles or coughing up blood.