Three months after my discharge from the Marine Corps, at 22 years old, I met my wife Megan, on December 10th, 2002. The very next day, I was drawn like a moth to a flame into dealing with a long term, terminal illness. Megan had Cystic Fibrosis, and after 8 years or declining health, she received a double lung transplant, and a new lease o life. Our daughter Shelby was born in 2007. In early 2014, those recycled lungs, which had brought our little family three years of uncomplicated health and happiness, finally began to give out. She died from chronic organ transplant rejection on November 19th, 2014 while I held her hand and let her go. I'm a single father and widower at 34 years old, and no one has published a manual for it. I don't fit the mold, because there is no mold. I "deal with it" through morbid humor, inappropriateness, anger, and the general vulgarity of the 22 year old me, as if I never grew up, but temper it with focus on raising a tenacious, smart, and strong woman in Shelby. I try to live as if Megan is still here with us, giving me that sarcastic stare because yet again, I don't know what the hell I'm doing.
Four years have come and gone since the last time Megan was present for Shelby’s birthday. By February 17, 2014, Megan had already been diagnosed with rejection, although she hadn’t been admitted to the hospital as of yet. Shelby was turning seven, and four days prior, Megan and I received the results from her bronchoscopy.
We rented out one of those “inflatable gym” spaces for Shelby, and invited all of her friends to join. It was a madhouse, to say the least...screaming, jumping, running around, laughing, and smiles from ear to ear. I distinctly remember the both of us having nervous thoughts in the back of our minds about Megan’s health, but suppressing all of them in order to give Shelby the birthday she wanted. She would have no clue, no inkling of something amiss on this day.
Going through some old texts and emails last week, I came across a conversation that Megan and I had just a day or two before the party…
Megan: Should we talk to Shelby about it?
Mike: Yeah, but let’s do it together. I don’t know how to start the convo with her, but we need to anyway.
Megan: Yeah. I don’t like this.
Mike: Me either.Read more